Global Registry for Inherited Neuropathies


 
           

Who We Are

The Hereditary Neuropathy Foundation and Hannah's Hope Fund have partnered as 501(c)3 non-profit foundations with the mission to fund research and find treatments and a cure for all Hereditary Neuropathies. Currently research is being done on Charcot-Marie-Tooth (CMT) Type 1A, (CMT) Type 2A, and Giant Axonal Neuropathy (GAN). Both organizations provide support to patients and their families by promoting awareness, advocacy and research.  The organizations are run by board of directors, consultants, executives and employees.  They are committed to curing all forms of heredtiary neuropathies as more funds become available.

The Global Registry for Inherited Neuropathies Committee works closely with medical, scientific, and industry experts to ensure the efficient and responsible governance of the registry. Through the registry we aim to reach HN patients throughout the world and gather data to promote and expand research. 

Your participation is crucial.  Please register today.

Together we can cure these conditions...we share your urgency!